“If you want to make god laugh, tell her your plans.”
~ Anne Lamott
This was supposed to be a good year. I planned to make it so. I intended to spend more time with people who make me laugh, and engage in activities that feed my soul and bring me joy. I wanted to write more and seriously work on my next novel. The whole of 2017 had been full of sorrow, heartbreak, and extreme stress, so I began 2018 with positive energy. On January 13th, I started Flamenco dance lessons…a life-long dream. On January 16th, I wrote a blog about my granddaughter, Ada. And then, on January 29th, I had my regularly scheduled, annual, diagnostic mammogram.
That Monday, the tech kept coming back into the room, taking more films of my left breast to show the radiologist. Finally, I was taken to the radiologist to have an ultrasound. Those of us who’ve had cancer, especially more than once, know the lingo.
Words like irregular, ill-defined, suspicious. Once you hear these words, “maybe” hangs over you like a noose.
Fear floods your mind and body. The bargaining begins. You’re back to the beginning. You can try to be positive, but you know all too well the results can be bad. The results can be positive. And you know what positive looks like. I didn’t feel good about this.
A needle biopsy was scheduled for Wednesday, February 7th. I wasn’t calm that day…I had a panic attack as they prepared me for the procedure. I would have called it off, but I knew I’d have to come back. Somehow, breathing and praying, I made it through.
I was supposed to have results by Friday, but there was a major snowstorm that week and they never came. My internist, Dr. N, finally called late Monday afternoon, February 12th, with the news. My intuition was right, I had breast cancer.
That Thursday, February 15th, my oncological surgeon explained how this cancer was different from the last two. The others were called ductal carcinoma in situ (DCIS)…which meant they were neatly confined within ducts. They still had to come out, but were contained. This time the cancer was not contained and it was invasive.
“The good news is that we caught it early and it’s very small. But you have to have a mastectomy,” said Dr. Y. “And we also have to take a lymph node to make sure it hasn’t spread to other parts of your body.”
That was the moment it really hit me. The moment every woman fears. I started to cry.
The next week, I met with a genetics counselor to see if I carry the BRACCA gene. Thankfully, I don’t. If I did, the recommendation would have been a bilateral mastectomy as a preventative measure.
The following week, I consulted with Dr. S, a plastic surgeon, to explore the possibility of reconstruction. Although given the option, I chose not to go larger. I’m happy with my body, and going larger would have involved a second surgery on the other side. I also insisted on a saline implant, instead of silicone. If anything ever leaks into my body, I want it to be something natural.
Because I’d had radiation therapy on my left side 16 years ago, there were questions about possible scarring that would rule out an implant. There were also concerns about the thickness and plasticity of my skin…also sometimes compromised by radiation. Neither of these concerns could be reconciled until the actual surgery. I wouldn’t know if reconstruction had been possible until I woke up from surgery.
Scheduling both doctors for the same day and same time was a little tricky. And I also had to work around a speaking engagement at the international women’s conference We Move Forward in Isla Mujeres, Mexico. My trip was booked for March 7th through March 13th. The date of my surgery was finally decided, Friday, April 6th.
As soon as I knew the surgery date, I called Tanya, my longest-time best friend, and asked, “What are you doing the first week in April?” I will forever remember her reply, “Just tell me when you need me and I’ll be there.”
Having to wait so long was both a blessing and a curse. There was so much time to have it weighing on me. And there was so much time to prepare. I started eating even better than I usually do. Exercising more, because I knew I wouldn’t be able to work out until at least a month after surgery. I had my will and trust revised, got my financial papers in order, and my billing caught up through March. I filed an extension for my taxes.
This, being the third time I’ve had breast cancer, might make one might think it gets easier. It doesn’t. In so many ways, this was harder. This cancer was much more serious. Life threatening. Especially if it had spread to my lymph nodes. I was terrified. My sleep was disrupted. I haunted my house in the night, while showing up for my patients during the day. The only time I felt normal was when I was working or with Ada.
I told far fewer people than I have in the past. The hardest thing about letting people know I had cancer was watching their faces crumble, their eyes fill with tears, witnessing their pain and fear and feelings of helplessness. Feelings that mirrored my own. I couldn’t get past my own grief. Whenever I tried to talk about it, I cried. When people were sweet to me or hugged me, I cried. Alone or with others, I cried. Other than family, friends, and patients I knew I had to tell, I told no one.
At We Move Forward, I tried going undercover. But I’d let Janeen, the founder, know, in case I wasn’t able to present. Therefore, her team all knew. I took much comfort in their sweet smiles, kind words, and hard hugs…but they made me cry. By the end of the conference a small number of other women knew, as well. My hope was WMF would give me some peace and some rest and help bolster my reserves going into the surgery. In many ways, it did. I felt fortified by all the positive female energy and all the love. But I also got sick with a respiratory infection and had to see my doctor as soon as I got home. My surgery date was closing in and I didn’t have the physical or emotional reserves I knew I needed. Dr. N agreed and prescribed aggressive treatment.
The infection, heavy duty antibiotics, fatigue from travel and sleepless nights, ongoing anxiety, and depression nearly took me out. I lost my appetite. My weight, already low, dropped by eight pounds. The two weeks before surgery I consumed as many calories as possible, and regained two pounds. Enough to pass my pre-surgery physical.
I picked Tanya up from the airport on Wednesday, April 4th. We spent time with Ada that afternoon and that night we went out for nachos and margaritas. The next morning, I had two sessions, then Tanya and I had manicures and pedicures.
Late that afternoon the hospital called with my surgery time. I was to report to nuclear medicine at 8:30 am for a procedure where they injected dye into my breast so, later, when the lymph node was biopsied, they would be able to tell if the cancer had spread. (It was, in the words of the late journalist Molly Ivins, “massive amounts of no fun.”)
My surgery was scheduled for 11:11 am on Friday, April 6th. I’d recently learned the custom of making a wish upon seeing it is 11:11. Some numerologists believe it’s an auspicious number, or signals a spirit presence. It was comforting, none the less.
Tanya and my son Jeff were with me before surgery, but I remember very little. Being hooked to an IV. The parade of doctors checking in. Dr. Y, Dr. S, the anesthesiologist. At times, the room felt crowded. Maybe we laughed, but I don’t remember laughter. Right before being wheeled off, I was given something in my IV to relax me and Jeff and Tanya were told to hug me quickly, because soon I wouldn’t remember.
I remember the hugs and them following as I was rolled down the hallway to the operating room. I remember huge round lights and a noisy crowd of blue-gowned people. I saw a clock and it was 10:56. I started feeling anxious and reminded myself that I’d already been given something for anxiety. That was my last memory until I woke up in recovery where I vaguely remember chatting with a nurse. Then, I was back in my room. My surgery had lasted 3 1/2 to 4 hours. Jeff and Tanya were happy to see me and told me the reconstruction was successful. The best news of all was that my lymph node was cancer free and Dr. Y was thrilled with the results.
I’m now seven weeks post-surgery and four months since my mammogram. It’s taken this long to be able to write about it. Recovery has also been “massive amounts of no fun.” (I’ll spare you the details.) Yes, I’m extremely grateful. Thank God for early detection! My annual mammogram probably saved my life. And I still struggle in the aftermath. I’m learning a lot. In my next post, I’ll share some of the lessons I’ve taken away from my experiences. For now, I’ll close with another quote from Molly Ivins:
“I have contracted an outstanding case of breast cancer, from which I intend to recover. I don’t need get-well cards, but I would like the beloved women readers to do something for me: Go. Get. The. Damn. Mammogram. Done.”
Dianne (Hughes) Holman
May 30, 2018 @ 1:57 PM
Had the damn mammogram last week. So far, so good.
Huge hugs and love!!!!
Sheila Flaherty
June 5, 2018 @ 3:15 PM
Thank you, Dianne. I hope your news STAYS good!
Niki Moe Horrell
May 30, 2018 @ 2:18 PM
Sheila, yet another beautiful and tender written piece by you. Praying you are on the recovery road to fun again very soon-Niki MH
Sheila Flaherty
June 5, 2018 @ 3:14 PM
Thank you, Niki!
Joanna Trotter
May 30, 2018 @ 2:54 PM
Great that you share your story so women can pull strength from it. Thank you. Wishing you a mighty recovery, multitudes of wonderous days with Ada and all the best as always.
Sheila Flaherty
June 5, 2018 @ 3:14 PM
Thank you, Joanna!
Demetra Diamantopoulos
May 30, 2018 @ 2:57 PM
Beautifully written Sheila.
Sheila Flaherty
June 5, 2018 @ 3:13 PM
Thank you, Demetra. xo
Sharyn Reiff
May 30, 2018 @ 3:07 PM
I wondered why you weren’t in Zumba, and now I know. I’m glad you’re on the other side of the surgery now and can focus on recovery. Wishing you a speedy recovery. I’m are you’ll be dancing again soon!
Sheila Flaherty
June 5, 2018 @ 3:13 PM
Thanks, Sharyn. I hope to see you soon!
Sylvie Romanowski
May 30, 2018 @ 3:24 PM
Sheila, I feel for you because 29 years ago, I had that mammogram, my first, and they saw DCIS in its very early stage–the whole breast came out, I had reconstruction (no foreign bodies in my body), no further treatment needed. I remember little about the experience, one forgets the pain after a while, which is just as well. Mostly I remember the kindness of colleagues and friends who kept me company, brought food, and sustained me. I wish and pray for a full recovery for you. Courage!
S.
Sheila Flaherty
June 5, 2018 @ 3:12 PM
Thank you for sharing, Sylvie. And thanks for your wishes and prayers.
Julie Chernoff
May 30, 2018 @ 3:34 PM
Sheila, thank you so much for sharing this powerful piece.
Julie
Janeen Halliwell
May 30, 2018 @ 3:44 PM
Sheila, I am so glad that you continue to write and share your story. The words authentic and inspiring get tossed around a lot these days but they truly apply to you. I feel blessed to have met you in 2014, and to have had your involvement as a speaker and co-facilitator at We Move Forward ever since. You bring much love and insight into that space, and have and will continue to be a positive influence and guide to all the women at WMF. In this moment I am so bloody happy that you are healing Amiga. And, moving forward, I’m committing to my yearly mammograms. Love you Sheila.
Sheila Flaherty
June 5, 2018 @ 3:09 PM
Thanks, Janeen. I feel the same about you. I’m glad your gonna get your mammograms done, and I love you, too.
Jennifer O'Leary
May 30, 2018 @ 3:49 PM
Your post made me cry and smile. I am so lucky to have met you and been in your awesome presence. I am so thankful you are healing well enough to share your experience with us. I can’t wait to see you at WMF2020 and give you a BIG HUG! xo
Sheila Flaherty
June 5, 2018 @ 3:07 PM
Thanks, Jennifer! I can’t wait to get that hug!
Sherry Swaggart
May 30, 2018 @ 3:56 PM
Thank you for sharing your story, Sheila. Now that I know WHERE you have been, and HOW you have been….I will be keeping you in my thoughts even more. Sending a hug your way. Take care.
Sheila Flaherty
June 5, 2018 @ 3:06 PM
Thank you so much, Sherry. I hope to see you sometime soon.
Paul Fleming
May 30, 2018 @ 4:15 PM
What Janeen said. I am blessed that through her I’ve gotten to know such an incredible person – thank you for the blessing that is you in our lives. Sending another hard hug your way.
Sheila Flaherty
June 5, 2018 @ 3:11 PM
Thanks, Paul. And you KNOW your hard hugs make me cry!
laurie
May 30, 2018 @ 5:12 PM
Sending you love,Sheila!
Thank you for sharing your story!
I am sorry for your tough days and wish for plenty more bright ones!
xoLL
Sheila Flaherty
June 5, 2018 @ 3:03 PM
Thank you, Laurie!
Diane Davis
May 30, 2018 @ 5:26 PM
I didn’t dare skip to the end because I wanted to be in your present – the moments you lived. As years pass, we can still remember the clocks, the names of procedures, the waiting, the gratitude for each “win”, and the beloved people in our lives. When life allows and hopefully when I am actually in town, I would love to see you in Asheville. Would love to talk when it suits you.
Sheila Flaherty
June 5, 2018 @ 3:02 PM
Thank you so much, Diane. I know you know, all too well! I’d love to see you next time there’s an opportunity!
Maxine King
May 30, 2018 @ 5:54 PM
Sending positive thoughts and love your way Sheila. Thank you for sharing your story, I have no doubt that you have inspired others to follow through with their mammogram. Looking forward to seeing you at the next Miving Forward!
Sheila Flaherty
June 5, 2018 @ 3:00 PM
Thank you so much, Maxine. See you at WMF 2020!
Susan Grieman
May 30, 2018 @ 6:32 PM
Beautifully written Sheila…I am so sorry you got so sick after “We Move Forward” I would have hoped all the positive energy would have scared everything away! I also ended up sick after being there…it knocked me to the curb good and proper!!! I enjoyed your talk and loved loved your book! I could not put it down?? Please take care of yourself!
Sheila Flaherty
June 5, 2018 @ 2:59 PM
Thank you for your sweet words, Susan. Sorry you got sick, too!
Margaret Tanenberg
May 30, 2018 @ 7:12 PM
Dear Sheila…..Please know my thoughts are with you as you continue on your journey fighting cancer. Your blog is poignant, eloquent, and heartfelt…..just like you. I wish you all the best there is.
Margaret Tanenberg
May 30, 2018 @ 7:34 PM
Dear Sheila…..please know my thoughts are with you, especially as you continue on your journey “And then there was cancer”, again. Your blog is poignant, eloquent, and heartfelt…..just like you.
Xoxo Margaret
Sheila Flaherty
June 5, 2018 @ 2:57 PM
Thank you so much, Margaret! Your sweet words mean more to me than you can know.
Judi Brown
May 30, 2018 @ 8:29 PM
Sheila, such an emotional piece.
I’m so glad your back to writing.
Thank you for sharing.
Sheila Flaherty
June 5, 2018 @ 2:52 PM
Thank you, Judi.
Adelaide Rowe
May 30, 2018 @ 9:36 PM
Oh my Sheila. I am so sorry. Both my beloved boss and my sister received the news last year. Very different cancers, and very different treatments. Both are fighters like you. The best of luck to you.
Sheila Flaherty
June 5, 2018 @ 2:52 PM
Thank you, Adelaide. I’m wishing your boss and your sister all the best.
Jillian
May 30, 2018 @ 9:44 PM
Thank you for sharing your story. I am so fortunate to know you and your strength is empowering.
Sheila Flaherty
June 5, 2018 @ 2:51 PM
Thank you, Jillian. I’m blessed to have you in my life.
Martha Gestring Brown
May 30, 2018 @ 10:00 PM
Sheila, thank you for sharing your life with me. Yes, I got my damn mammogram, and it was a pressing engagement. Sending love and light your way. Martha Gestring Brown
Sheila Flaherty
June 5, 2018 @ 2:50 PM
Thank you so much, Martha. I’m glad you got yours done, and I’ll take all the love and light I can get!
Suzy
May 30, 2018 @ 10:03 PM
You go girl
Sheila Flaherty
June 5, 2018 @ 2:49 PM
Thanks for helping me keep going!
Maureen O'Grady
May 31, 2018 @ 10:01 AM
Hugs and prayers, dear Sheila… thank you for sharing the ups and downs of your journey so fearlessly.
Sheila Flaherty
June 5, 2018 @ 2:48 PM
Thank you, Maureen…for your hugs, prayers, and sweet words.
Eric Diekhans
May 31, 2018 @ 1:54 PM
Prayers.
Sheila Flaherty
June 5, 2018 @ 2:47 PM
Thank you, Eric.
RoseMary
May 31, 2018 @ 2:36 PM
Thank God for the positive outcome. I’ll keep you in my prayers.
Sheila Flaherty
June 5, 2018 @ 2:47 PM
Thank you so much, RoseMary!
Patty Baker
May 31, 2018 @ 8:43 PM
Had the mammogram, had the trip abroad, had the ultrasound, had the follow up ultrasound, and finally last week had the needle biopsy. I’m shocked to learn you were going through it again in the same period. I’m good. I’m so very, very sorry you have had to go through this harrowing experience again. I know you have the resources for healing.
Sheila Flaherty
June 5, 2018 @ 2:55 PM
Thanks, Patty. So sorry to hear you had to go through what you did…and so very happy to hear you’re good!
Ted Rich
May 31, 2018 @ 10:52 PM
Dearest sis! Congratulations in getting the cancer gone! Love your lil “bro”, Ted
Sheila Flaherty
June 5, 2018 @ 2:45 PM
Thank you, Ted! Love to you and Cristina.
Nancy Beckett
June 1, 2018 @ 12:08 PM
OH My Dear,
That explains why you had been silent lately! I have had a couple mammograms but always felt a deep rage for the pain. You just helped me find perspective. Love to love you baby…
Sheila Flaherty
June 5, 2018 @ 2:53 PM
Thanks, Nancy. Love to love you, too.
Anne Strohm
June 1, 2018 @ 10:42 PM
My wonderful longtime friend,
I am SO sorry you had to go through this again!! Truly
“a whole lot of no fun”. I’m so glad that you had Jeff and Tanya with you through the whole experience, and that you’re regaining your physical and emotional strength.
Please let me know a good time for a visit, so we can laugh and cry and drink a glass (or two) of wine.
Blessings and prayers to you and yours,
Anne
Sheila Flaherty
June 5, 2018 @ 3:04 PM
Thanks, Anne. I’m looking forward to it!
Brigit Kubiak
June 5, 2018 @ 11:40 PM
I finally found the courage to read your blog about your breast cancer. I knew you were going to have the surgery and was really anxious about the outcome. Thank you for sharing your thoughts and fears about the whole ordeal. I have such respect for you, and it is so important for the rest of us to see how you managed to get through this. You are a remarkable person whose humanity is a source of true inspiration for everyone lucky enough to know you.
Sheila Flaherty
September 28, 2018 @ 3:27 PM
Thank you for your sweet, supportive words, Brigit. I so value your friendship.
Ann Baker
June 11, 2018 @ 8:44 AM
Thank you for sharing your story and inspiring others to get screened. What is remarkable about you is your thoughtfulness and desire to use your suffering to help others. In the midst of your ordeal, you are thinking, how can I prevent this from happening to someone else. Many blessings for your continued recovery and getting back to your joy-filled plans for 2018!
Sheila Flaherty
September 28, 2018 @ 3:28 PM
Thank you for everything, Ann!
Anne Strohm
June 17, 2018 @ 7:07 PM
Dear Sheila,
I’ve been trying to get in touch for two weeks – please call or text me, or send an email – I’d like to see you, whenever you’re ready. Sending you love and prayers,
Anne